Skip to main content

Who Weighs Almost As Much as a Sack of Potatoes? Eleanor! Yay!

Eleanor is two months old now and doing well. 

The doctors plan to gradually wean her vent settings until they can try out some new head gear (get rid of the elephant mask again...the RAM was too much work and she experienced increased heart drops and oxygen). She stays pretty stable now at under 30% oxygen and has had vastly fewer heart drops. She mostly just stops breathing when she is super comfy and super asleep.

She weighs very very very close to FIVE pounds. Kim said, "If you would have told me on January 22nd that roughly two months after birth, she’d be this huge, I would have laughed in your face." She is filling out quite nicely, if I do say so myself :) What a cutie 

Eleanor passed her thyroid test with flying colors. She has her third eye exam tomorrow (hoping for equally good results: no ROP, great growing eyeballs).

Mom went back to work Wednesday. She was supposed to return Tuesday, but she had to call off because she had the flu...uhm, thanks, Nature. Perfect timing. It was ROUGH but, in her words, she has to remind herself that this is only temporary until Eleanor gets to come home. It's easier said than done. (Stay strong, Kimbee!)

Today, I'm told Eleanor pooped through six diapers while Dad was changing her...LOL

Mom and Dad (and Eleanor, I'm sure!) also want to express their continued appreciation for all the love and prayers for the little miss as she continues to grow and strengthen.

Comments

  1. Lovely to hear she is getting bigger and better ❤❤❤stay strong family. Love you always!
    M

    ReplyDelete

Post a Comment

Popular posts from this blog

The Last Hurdle Before Home

My has the time flown (but at the same time crawled)! Eleanor is now 5 months old and this morning weighed in at 10lbs, 13oz! She officially is too big for newborn clothes as well as the tiny baby socks. She poops on her ensemble approximately once a day and still enjoys playing and being held. She is doing very well post-steroid regimen. Her last dose of the big guns was on Friday morning. She has since switched to hydrocortisone so that her adrenal gland knows to kick it back into gear and her body doesn’t go into a shock of sorts without the steroid boost. She will have to have an ACTH test in two weeks when she is finished with this round of steroids. ACTH is a hormone injected into the shoulder muscle. They draw blood before and after to measure how well the adrenal gland responds. Eleanor has also been learning bottles. She started off pretty well, initially taking bottles with understanding the general concept of suck, swallow, breathe, but she oftentimes just wants to...

First 48

Hi friends and family of Kim, Alex, and baby Eleanor Sutara, After talking with Kim and Alex, it seemed easiest to send updates to everyone through a blog post. We are grateful and appreciative of everyone's concern, support, and well wishes as Eleanor begins her long journey in Akron Children's. Eleanor is a PPROM baby, meaning that Kim experienced a preterm premature rupture of the membranes (PPROM), showing little to no amniotic fluid in utero, and was subsequently hospitalized long-term for monitoring at 24 weeks following a large bleeding episode, with the hopes that the baby would be able to hang in to 34 weeks. I will let Kim elaborate if she wants on the pre-birth details, but for now I'm just slapping some hard and fast details together from what I can immediately recall. Heart monitoring of the baby beginning on Saturday, 19 January revealed some variability, and Kim was taken to the labor and delivery ward as a precaution. By Tuesday morning, Kim's doct...

A Nine-Pound Peanut

It’s been a while since the last update! This is the start of (I believe) week 4 of Eleanor’s steroid regimen. The steroids are doing their job and Eleanor is weaning her support settings well. The little lady hit NINE POUNDS today and, as always, is looking adorable as all get-out in all her onesies and holiday-themed outfits and gigantic head bows. The past several visits have all been so rewarding. I got to hold my niece for the first time Friday afternoon! Her Grandpa Bob held her on Monday morning. Eleanor is alert (and looking like brown-eyed girl more and more every day!!), expressive (so fun seeing her responses), and it’s a whole different experience getting to hear her (helps, not having a tube down your throat, I’d reckon). Also want to note how amazing a four-day weekend probably was for Kim and Alex. A happy Memorial Day weekend it was, indeed. This weekend, Eleanor also got upgraded to a larger crib (more room for activities!) and is really set up in the toy dep...