Skip to main content

The Life-Changing Magic of Tidying Up: The Eleanor Art of Decluttering

A Sunday update on our little lady, via texts from Kim:

Doctors are taking Eleanor off her insulin to see how she does. As of around 5pm, her sugar was at 173.

She was also able to have an arterial line removed from her belly, and doctors may insert a PICC line tomorrow in order to remove the other line from her belly button. A PICC line - or percutaneously inserted central catheter - is an IV line that travels through the arm and up through the chest, and is less likely to get infected.

In addition, nurses removed one of her machines (?!). Upon further questioning, Kim said that she forgets what it's called (understandable), but that it takes her blood, runs diagnostics, and then puts it back in. So, yay for the bambino no longer having to share her blood with a machine! Asked for a quote, Eleanor responded that the machine did not "spark joy," so out it goes (jokes).

They're also taking her nitric back down to 5 and seeing how she tolerates that. Last evening, the goal was to wean her off completely, but apparently she did not cooperate, so this morning when Mom and Dad arrived, she was back up to 10. And because I think this detail is adorable, Kim reports that Eleanor "has wiggled out of her eye mask 4,946,263,828,473 times."


Comments

  1. Awww God is good. Sounds all very very good. What a little fighter. Yay Ellie. Hope no one minds I'm calling her Ellie lol. It's cute but Elenore is BEAUTYZ. Love you all.

    ReplyDelete

Post a Comment

Popular posts from this blog

First 48

Hi friends and family of Kim, Alex, and baby Eleanor Sutara, After talking with Kim and Alex, it seemed easiest to send updates to everyone through a blog post. We are grateful and appreciative of everyone's concern, support, and well wishes as Eleanor begins her long journey in Akron Children's. Eleanor is a PPROM baby, meaning that Kim experienced a preterm premature rupture of the membranes (PPROM), showing little to no amniotic fluid in utero, and was subsequently hospitalized long-term for monitoring at 24 weeks following a large bleeding episode, with the hopes that the baby would be able to hang in to 34 weeks. I will let Kim elaborate if she wants on the pre-birth details, but for now I'm just slapping some hard and fast details together from what I can immediately recall. Heart monitoring of the baby beginning on Saturday, 19 January revealed some variability, and Kim was taken to the labor and delivery ward as a precaution. By Tuesday morning, Kim's doct...

The Little Peanut That Could

Eleanor has been growing like a weed! Using little to no energy to eat allows for all those calories to be stored, aside from the hundreds she burns kicking all day long.  Eleanor had a swallow study this week where it was determined she needed thicker milk. There are no thickeners for breast milk that are NICU approved so she, reluctantly, is now trying out formula. She gets to attempt one ounce via a bottle and the remainder through her ng-tube. The remainder is still breast milk, so we’re not completely throwing in the towel.  Thicker food has made a significant difference in the feeding process. What used to be terrifying and stressful, as Eleanor would choke and stop breathing, is now a wonderful experience. The only problem is Eleanor often just gums the bottle and isn’t actually drinking anything. But she’s still happy, so we’re okay with it.  This weekend she is to repeat her stim(ulation) test. Recall from the last post, this is the synthetic injected ...

Into the Swing of Things

Happy (belated) Mother’s Day! Eleanor got her vent tube removed on Saturday and is doing WONDERFULLY! Behold the power of steroids! They placed her on a CPap nasal cannula instead of the elephant mask, but she still is actively annoyed with the prongs in her nose and has figured out that she can remove them by smooshing her face against anything and jerking her head away. She’s too smart for her own good. She has also already begun weaning her CPap support settings and hangs out at room air (21%) oxygen almost all of the time. She is breathing comfortably unless she is super angry, and who really breathes well when they are sobbing anyway? Doctors have discussed moving her to Vapotherm (this is a high flow nasal cannula that makes oxygenated gas that pumps into the lungs and is a great oxygenation tool and less invasive than CPap...read more here:  https://vapotherm.com/hi-vni-technology/ ) on Thursday. This makes Mom and Dad really nervous that they are pushing her too hard ...